Hi, I’m Sara, and I’m a Google addict.
My baby also wears a DOC band for positional plagiocephaly (a word I learned in my frantic googling when my pediatrician first told us that our baby had a flat spot) that was the result of undiagnosed torticollis (which I caught, thanks to Google).
But there was a lot of stuff that Google wasn’t so helpful with when Jacob first got his helmet and I had questions, so now that we’re almost finished (THANK FREAKING GOD! We officially have two weeks left of him wearing it, but we had our “graduation” appointment already, so we’re pretty much there!), I figured a blog post (aka adding to the world of Google for other paranoid mamas) outlining all that stuff could help anyone who just got a baby helmet and was frantically trying to figure out if everything was okay or not.
Let’s start with how it all works at the very beginning. In case you haven’t gotten your helmet yet, Cranial Technologies will go over most of this part with you.
Days one and two, you’ll leave the helmet on for three-to-four hour intervals, then check for red spots. If the red spots go away in an hour or less, cool, put the helmet back on. (They give you a paper to write down timing on. Use it. It helps. Especially if you’re like me and spending the early days weeping about the helmet and can easily lose track of time.) If the red spots take more than an hour to go away, call Cranial Technologies.
Warning: probably not in those first couple days, but you WILL eventually get red spots that don’t go away immediately. Try not to panic (I’ll get to that in a minute).
IF your baby’s red spots all go away within an hour after like three of those checks, your baby can sleep in the helmet.
I figured that would be the worst part, but honestly, Jacob adjusted just fine. He never even seemed to notice it was on. We did freak out the first couple of nights when we heard loud thuds on the baby monitor, only to find he’d banged his helmet into the side of the crib. Which also made me wonder how often he’d banged his unprotected head against the crib and it hadn’t made a loud enough thud for me to notice. But at least he’s protected now when he does it, right?
The first couple of weeks, you’ll need to take off the helmet and wipe your baby’s head down at diaper changes/any time he or she seems hot. THIS IS A BIG ONE. That sucker is an inferno! It’s like wearing a Russian fur hat indoors at all times. Your baby is going to get sweaty and gross. So dressing him or her in ridiculously inappropriately cool clothes is important. (Learned this the hard way. We had our guy in a warmish car with a hoodie on and he got super fussy. Turns out his whole back was drenched with sweat. Baby is going to be a little fireball with that helmet on. Keep him or her cool!)
We did great the first week once we started dressing him cooler. Then, Friday afternoon, Jacob got a red spot that didn’t go away in an hour. And it was right after Cranial Technologies closed for the weekend (of course).
So I did what any rational person would do: I panicked.
Actually, I took the helmet off, because I Googled “DOC band red spots” and saw that red spots can lead to skin breakdown and I FREAKED that he was going to get a bloody head and we wouldn’t be able to wear the helmet until it healed and by then he would have grown out of it and then we’d have to spend another $2,500 that we don’t have out of pocket for a new helmet.
But the take-the-helmet-off plan sucked too because we paid $2,500 for this hunk of junk and, damnit, it wasn’t going to fix Jacob’s head sitting on the counter!
That piece of plastic and foam was going back on his head, no matter how much I hated it. So I slathered Aquaphor on Jacob’s head and the red spot was better by morning. I also ordered some British “nappy rash” cream that the helmet mamas across the pond rave about for red spots off of eBay, just in case–which is currently sitting in a drawer because the Aquaphor worked beautifully. Cranial Technologies said to use a little cortisone cream, but the Aquaphor did much better for an irritation spot. Just make sure you wipe the excess off before you put the helmet back on because it can *supposedly* damage the foam. (I kind of think that’s like the airplane rule of shutting off electronics for takeoff and landing. There’s a zero percent chance they’d let you have electronics on a flight at all if there was even the most remote possibility of them interfering with the plane’s equipment. TOTAL BS. But whatever.)
We got Jacob in for his appointment and they shaved down the spot that had been rubbing (by the velcro opening of the band), and the red spot there got better. It did come back closer to adjustment number two, but the tech said that red spots tend to get worse when the band needs adjusting and that’s “good” because it means there’s been growth.
Their method of determining where to shave for red spots is… well… interesting. They put lipstick on your baby. Not on his mouth, but on the red spots, then put the helmet back on, wiggle it around, and shave where the lipstick rubbed off on the helmet. Which seems legit. I mean, nothing screams “medical professionals” like lipstick on a baby.
All was well.
Then I went back two days later for another adjustment because we got red spots that wouldn’t go away again.
That was by far the most frustrating stretch of wear in the helmet so far. And by then, I was pretty disillusioned with Cranial Technologies because A) they didn’t do any measurements at his official adjustment, just told us “oh, wow, it looks great,” and B) I had to take off work TWICE in the same week to get Jacob up to Columbia for adjustments. Like, I do have a job other than shuttling him to the helmet store! (Yes, I’m calling it the helmet store. Because they’re not doctors. They sell helmets.)
And I got even more disillusioned when they shaved a little more foam out and then told me Jacob had heat rash. It was 40 degrees out, which yes, was better than last week’s polar vortex-nado thing, but it was still cold. How do you get heat rash when it’s 40 degrees out?
In my frustration, I spent a while reading everything I could find on that 2014 study that claims the helmets don’t do anything and was thinking I’d just wasted 16.6 Springsteen tickets worth of money on this thing that was hurting my baby. (Who am I kidding? I don’t go to concerts right now. I have a baby! But that’s still my unit of measurement, soooo… maybe someday I’ll be going to shows again.)
They told us to keep it off until everything was totally skin-colored and to put a little cortisone on the “heat rash.” They also said that in areas where babies have “stork bite” birthmarks (which I totally didn’t think was a thing when our pediatrician said it at first… I had to Google!), heat rash is more common. And Jacob has a tiny stork bite under his hairline, right next to the helmet-induced red spot. So we went home and followed directions.
I will say this–Cranial Technologies deals exclusively in baby helmets, so they do know their stuff. The spot that they shaved out stayed skin-colored and the other spot WAS heat rash. It went away in a day, but started creeping back if we let him get too hot in the helmet. We were out of it for about 30 hours that weekend before I realized (thanks Google) that baby powder helped.
Now I know baby powder is the current baby antichrist, but if your DOC Band baby has heat rash, it’s a miracle cure. The Johnsons and Johnsons kind is cornstarch now, not talc (meaning don’t use the old bottle from the 80s that’s under your sink!), so it’s less bad. Just make sure you shake it away from the baby and just use it in his or her hair where baby gets sweaty/heat rash. And if your mom guilt won’t let you use it for that, just remember, all of our moms used the bad talc kind of baby powder on us and liberally shook it right from the bottle onto us and none of us have powder-related breathing problems.
Heat rash crisis averted.
Last, but DEFINITELY not least, the smell. I Googled HARD to figure out the best way to combat the smell before we even got the helmet because my lovely pregnancy sense of smell decided to stick around postpartum and I do NOT want a baby who smells like a foot. And not a cute little baby foot, I mean a stinky husband foot!
Google didn’t disappoint. One random mama on BabyCenter’s messageboards posted that she used wintergreen rubbing alcohol. So I ordered some from Amazon (then later discovered that Safeway carries it for much cheaper. Oh well). And that stuff WORKS. Granted, he now smells like a stick of gum when he goes to bed, but his head is mercifully stink-free the rest of the day.
So my method is to put the wintergreen rubbing alcohol in a spray bottle (it’s like absinthe green, which definitely leaves a green tinge on the foam over time, but… well… who cares?), spray it in the helmet, scrub with a toothbrush, then wipe out with a towel. Let it dry for the full hour the helmet is off, then back on it goes. Between the wintergreen alcohol and the baby powder, we’ve had zero smell issues, and we definitely have a sweaty baby, so I can attest to this stuff working.